About the Symposium

Vision and Mission

Our symposium aims to serve as a resource for stakeholders, addressing challenges from political, social, and health perspectives. We strive to influence policy, advocate globally, and ensure equitable access to treatments and care for those affected by MPS and related diseases.

Discover the story

History of the Symposium

The International MPS Symposium has a rich history that began in 1982 with the first (unofficial) gathering held in Minneapolis, Minnesota, organized by Dr. Chet Whitley. Initially conceived as a small meeting to bring together researchers, clinicians, and families affected by mucopolysaccharidoses (MPS), its purpose was to share knowledge, foster collaboration, and provide hope to families by advancing research and care. Over the decades, the symposium has grown into a premier global event held every two years, attracting participants from all over the world. Host locations rotate internationally to reflect the worldwide impact of MPS and engage diverse communities.

In its early years, the symposium focused primarily on clinical and scientific advancements in MPS research and treatments. Over time, it expanded to include patient and family support programs, educational workshops, and advocacy initiatives. This evolution allowed the symposium to serve not only as a platform for scientific breakthroughs but also as a place for uniting voices to address medical, emotional, and logistical challenges associated with MPS.
The symposium has celebrated significant milestones, including progress in enzyme replacement therapies, gene therapy research, and newborn screening, all of which have been discussed and advanced during its sessions. These gatherings have been instrumental in fostering global collaborations and inspiring new directions in research and care. Families, patients, researchers, clinicians, and industry stakeholders now come together at each symposium to address disparities in healthcare and advocate for equitable access to cutting-edge treatments.

As the symposium has evolved, its themes have begun to focus on innovative solutions such as artificial intelligence and the future of diagnostics, treatment, and support. The upcoming 2026 International MPS Symposium in Florence, Italy, will highlight the advancements of the past two decades while envisioning the next 20 years of progress. This legacy of collaboration, inclusivity, and impact continues to make the International MPS Symposium a cornerstone of hope and knowledge for the global MPS community.

2026 Theme

Past editions

1988 – The very first Symposium on Mucopolysaccharidosis and Related Diseases was organized by Dr. Chet Whitley. This was held from May 15 to 18, 1988, in Minneapolis, USA. This event marked the beginning of a series of international meetings focused on MPS and related diseases
1989 – 1st International Symposium: Münster, Germany (Initially called the International Symposium on Lysosomal Diseases; later recognized as the 1st MPS Symposium).
1990 –  2nd International Symposium: Manchester, United Kingdom (May 4–6).
1993 – 3rd International Symposium: Essen, Germany (May 18–21).
1997 – 4th International Symposium: Wollongong, Australia (May 24–27).
1999 – 5th International Symposium: Vienna, Austria (May 18–21 or March).
2000 – 6th International Symposium: Minneapolis, Minnesota, USA (May 19–21).
2002 – 7th International Symposium: Paris, France (June 20–23).

2004 – 8th International Symposium: Mainz, Germany (June 10–13).
2006 – 9th International Symposium: Venice, Italy (June 29–July 2).
2008 – 10th International Symposium: Vancouver, Canada.
2010 – 11th International Symposium: Adelaide, Australia.
2012 – 12th International Symposium: Noordwijkerhout, The Netherlands.
2014 – 13th International Symposium: Sauípe, Bahia, Brazil.
2016 – 14th International Symposium: Bonn, Germany.
2018 – 15th International Symposium: San Diego, USA (August 1–4).
2021  – 16th International Symposium: Barcelona, Spain (held virtually due to COVID-19).
2024 – 17th International Symposium: Würzburg, Germany (April 4–7).
2026 – 18th International Symposium: Florence, Italy (June 4-7)

2026 Theme: “Reflecting on 20 Years to Shape the Next 20”

As we commemorate two decades of progress from the last time the Symposium was held in Italy in 2006, the 2026 theme encourages us to reflect on our achievements and strategize for the future, ensuring continued advancements in research, treatment, and support for the MPS community, with a focus on digital technology and underserved countries.

Organizing Committee

Our dedicated organizing committee comprises leaders from various MPS societies and patient associations worldwide, working collaboratively to ensure the success of the symposium and the advancement of our shared mission.

Scientific Advisory Committee

The Scientific Advisory Committee includes esteemed researchers and clinicians specializing in MPS and related diseases, providing guidance on the symposium’s scientific content and ensuring the dissemination of cutting-edge research.

Family Program Committee

Recognizing the vital role of families, the Family Program Committee develops sessions and activities tailored to the needs of patients and their loved ones, fostering a supportive and informative environment.

Host Organizations

The symposium is proudly hosted by leading organizations dedicated to MPS research and support, including the Brains for Brain Foundation, International MPS Network, and MPS Italy. These organizations collaborate to drive research, influence policy, and provide resources for those affected by MPS.