To establish a new paradigm for rare disease care where the powerful collaboration between families and professionals serves as a global model for accelerating medical progress.
We envision a future where advanced technologies enable rapid, accurate diagnosis from birth; where revolutionary treatments are accessible to every patient regardless of geography or economic circumstances; and where the MPS community’s innovative approaches inspire and guide progress across all rare diseases.
Through the Florence Declaration, we will launch a unified global network that ensures no patient waits years for answers, no breakthrough remains confined to laboratories, and no family faces their journey alone.
Our vision extends beyond MPS to create a replicable framework that transforms rare disease care into a field of limitless possibility and hope.